We encourage all concerned about health data to sign the petition at getmyhealthdata.org.
Lygeia Ricciardi, the former Director of Consumer eHealth at the ONC, announced Sunday on The Health Care Blog, an initiative to request access to health records, specifying that, in fact, it’s law that we may request access to our records. As mentioned in the announcement, our rights around patient data are available at the Office of Civil Rights (OCR) within Health and Human Services.
Unpatient.org fully supports this effort.
We also believe we should go further, that we should own our personal health data. We believe everyone should have access to a secure container with their records along with any other personal information. We also believe that information should be readily accessible AND free from any third party.